Mycarematters is one of nine projects announced for the Essex Challenge Dementia Programme

We’re very proud to have been selected as a finalist for the Essex Challenge Dementia programme. We’re looking forward to working with Essex hospitals, care homes, carers and people living with dementia to further develop Mycarematters in the coming months.

Do you want to create a free Mycarematters profile for yourself, a relative or your care home residents? Click here

Read the full press release from Essex County Council:

Challenge Dementia, the first national search for next generation products, technologies and services that could transform the way people live with dementia in Essex, has reached the next stage with the announcement of nine shortlisted projects.On Wednesday 9 May, a panel of judges, chaired by Professor Alistair Burns, NHS England’s National Clinical Director for Dementia and Older Peoples’ Mental Health met to consider a shortlist of projects from the 71 entries. They have now invited nine finalists to test and develop their ideas in Essex over a six month period.
The finalists’ ideas range from technological solutions using virtual reality, video and AI systems to support the creation of digital stories, the growth of dementia friendly communities both online and in person, to personalised timelines and systems to trigger memories and holistic care solutions.  All of them have at the heart of their idea or solution the desire to enable people living with dementia to remain connected to the people and places around them and to maintain their identity.
Each will receive £5,000 and access to a unique ecosystem of dementia experts from across the community, voluntary, public and private sector as well as people living with dementia.  £100,000 will be awarded to the winner who successfully meets the entry and judging criteria.
Professor Alistair Burns, NHS England’s National Clinical Director for Dementia and Older Peoples’ Mental Health said: “I am delighted to have chaired the panel that shortlisted the nine projects that will progress through to the next phase of the Challenge Dementia Prize.  As a panel we have been impressed by Essex County Councils spearheading of this search for a ‘step change’ in dementia. This prize adds to a strong base of work that will help keep dementia in the spotlight and enable us to better support those living with the condition.  Along with the other judges I was highly impressed by the quality and depth of the entries.  I believe we have chosen a range of ideas that have the best potential to transform the way people live with dementia.  I look forward to hearing how they all progress as we head into the testing phase, and meeting with fellow judges again in November to decide on the winning idea.”

Cabinet Member for Health and Adult Social Care, Cllr John Spence from Essex County Council said:“I am delighted that Essex County Council are at the forefront of this pioneering challenge and have been impressed both by the quality and quantity of entries into the Challenge Dementia Prize.I would like to thank all the judges for taking the day and using their expertise and experience to decide on the nine shortlisted entries.  Having seen the range of ideas and solutions I look forward to hearing how these projects develop during the next six months, knowing that all of them are working hard to improve the lives of those living with dementia.”Further information can be found at the Challenge Dementia webpage  http://challenge-prizes.essex.gov.uk/challenge-dementia/

The shortlisted projects are:

  • The Wayback, The Wayback Team , Hertford
  • Home, EPUT NHS and Accenture Liquid Studio, Essex and London
  • Happy at Home, Active Minds, London
  • Building Creative Communities, University of Essex, Colchester
  • Vivify Me, 11 year old boy, London
  • Remarkable Lives, Remarkable Tech Ltd, Stroud
  • MyCareMatters, My Care Matters Ltd, Horsham
  • Communication without waiting lists, eQuality Time, Luton
  • How Do I?, NFC Helps Me Limited, London

Pioneered by Essex County Council, Challenge Dementia was open to individuals, teams and companies with ideas for ambitious and innovative products, technologies and services that will enable people living with dementia to remain connected to the people and places around them and to maintain their identity.

Advertisements

Mycarematters works in any care setting

We originally designed Mycarematters as a way of reliably sharing a person’s non-medical needs and preferences with hospital staff, wanting to eliminate the delay between admission and collecting the information about what matters to a person, when they can’t communicate those things for themselves.

But of course it works just as well in care homes to ensure everyone interacting with the person is aware of the information they need to deliver person-centred care. There is then the added benefit of a person’s Mycarematters Profile being immediately available in the event the person has to undergo a stay in hospital.

It’s just the same for people being cared for in their own home. It’s ready and waiting for a hospital stay, just in case, but it can also provide visiting carers with a quick introduction of the information they need to provide a more personalised style of care.

A person’s Mycarematters profile can be viewed on any internet linked device but we find that printouts are still the most popular way to display a person’s Profile, and we offer a range of display options to suit all environments: click here for further information…

Wish to create a free Mycarematters profile for yourself, a relative or your care home residents? Click here

Leaflets anyone?

MCM leaflet cutout v2Our design team have created a new leaflet to explain what we’re all about, for those people most likely to undergo a hospital visit, and we need to get them out there! Are you a homecare agency, a memory assessment unit, a carers’ group, GP surgery or any other organisation interacting with people who might benefit from having a Mycarematters Profile?

If so, please email us a brief description of your organisation, the number of leaflets you need and your full postal address, and we’ll get some in the post to you.

It’s entirely free to create a Mycarematters Profile and having one in place can help hospital staff get to know the person beyond the medical condition. It provides information staff need if they are to deliver person-centred and holistic care, and is particularly important if the person will struggle to communicate their needs and preferences.

Mycarematters wins Outstanding Product Award for Dementia Care

We were delighted to be selected from a shortlist of 5 organisations to win this year’s Outstanding Product Award in the National Dementia Care Awards.Winners

Winners of the National Dementia Care Awards were presented with their trophies by John Middleton at a Gala Night held on Thursday 9th November at Doncaster Racecourse.

The National Dementia Care Awards is an annual event organised by The Journal of Dementia Care, a multidisciplinary journal for all professional staff working with people with dementia, in hospitals, nursing and residential care homes, day units and the community. The awards were created to recognise the very best people in the dementia care sector, whose exceptional work and contributions make better, person-centred care a reality. There were 16 categories to enter overall and there were four or five finalists in each category with two independent judges. For more information and all categories, please visit http://www.careinfo.org/dementiacareawards-2017/ or to create a Mycarematters profile click here.

What’s different about Mycarematters?

Three aspects make Mycarematters stand out from the other interventions designed to improve person-centred care in hospitals.

Brevity – few of the hospital staff interacting with a patient will have time to go to their file and read what might be considered ‘non-essential’ information. But put a single page of facts-at-a-glance in their line of sight and they’ll be able to see a patient’s likes and dislikes within seconds.

Immediacy – when a person arrives on a ward unable to communicate, it might be a day or two before family members visit or staff get the opportunity to contact them to find out more. Until then, staff will be unaware of what matters to the patient which can lead to mistakes, as well as confusion and anxiety for the person. If a Mycarematters profile has been created in advance of a hospital stay, it can be brought in in paper form, or is available for staff to view or print out from any internet linked device.

Transferability – a person’s Mycarematters profile can be accessed from any internet linked device with their name, date of birth and Mycarematters code. So, whether moving between wards or hospitals or transferring to residential care, the person’s Mycarematters profile can immediately be viewed onscreen or printed out.

We are working hard, not only to raise awareness of the importance of creating a Mycarematters profile, but also to encourage hospitals to embed the use of Mycarematters into their procedures. Create profiles now, for yourself and the important people in your life, and help spread the word!

Click here to create a Mycarematters profile.

Click here for further information on how your hospital might use Mycarematters.

 

 

 

Mycarematters in the papers

We had the opportunity to do some advertising in a couple of the national papers recently, as there were some tempting deals in recognition of World Alzheimer’s Month. It’s easy to get bogged down in the day to day firefighting and minutae of running a project like this, so an advertising campaign is the perfect opportunity for us to remind ourselves of the bigger picture: our goals and aspirations, who we most need to reach, what outcomes we are seeking.

Design team meeting 180717

After a couple of brainstorming sessions with our fabulous designers, the Mycarematters Design Collective, this is what we came up with:

In the Guardian on World Alzheimer’s Day we published this…

Guardian ad 210917

And in the Mail on Sunday’s Lifestyle section a few weeks later we went with this…

Mycarematters MoS advert 151017

We asked the ‘Twitterati’ for some feedback and ‘Stan the runner’ in particular got a lot of comments: ‘Very touching and warm’, ‘visually striking’, ‘captures the essence of the person’, ‘helps us see beyond the illness and distress’, ‘simple to read, easy to understand’, ‘so very true: everyone needs to understand how a little chat can go a long way’, ‘brilliant idea: need more of this’, and more.

It’s unlikely to be something we do on a regular basis but it was a useful exercise and reaffirmed for us how vital a service like Mycarematters is to help encourage a person-centred approach for ALL patients.

To create, update or retrieve a Mycarematters profile click here.

Why do we call Mycarematters a ‘system’?

Mycarematters is much more than ‘just’ an online platform. I’ll explain what I mean by that, but first a bit of background.

Initially, we produced the Remember-I’m-Me Care Charts, simple wall charts to share a person’s needs and preferences, which have been adopted by care homes throughout the UK. When a care home manager commented how useful it was for the paramedics to read it before transporting a resident to hospital, we wanted to find a way for that information to travel with them. Our first solution was the Pocket chart, which addresses some of the shortcomings of the other solutions available. It is designed to fit in a pocket or handbag, stand up by the bedside and it’s shape and size make it difficult to file it away. It also retained what I believe to be a vital feature of all our tools: it is a quick facts-at-a-glance read.

The Pocket Care Chart is now widely used, but it does not address the issue of information getting lost in transit or left behind. So that’s where Mycarematters comes in, utilising the benefits of the internet to store and share information, and making it accessible via any internet-linked device.

A person’s Mycarematters profile can be viewed onscreen, but limiting it to that loses an important feature of the care charts: ensuring that anyone interacting with the person has access to their needs and preferences. At some point we may be able to set up tablets next to hospital beds (it is unlikely in the foreseeable future that all porters, volunteers, housekeeping staff etc will be issued with any kind of electronic device) but for now what hospitals are telling us is they need printouts.

The question then arises as to where the printout should go. I am convinced that it needs to be in everyone’s line of sight. Even a single-sided sheet of facts-at-glance is less likely to be seen if it’s consigned to the file. (I was delighted to see that NHS Improvement agreed with this principle in a recent report.) Every member of hospital staff has a role to play in maximising the quality of care received by a patient, so it stands to reason that every member of staff needs to understand what matters to the patient. Few staff will have the time – or feel they have permission –  to go to the patient’s file for ‘non-essential’ information, so we have a developed a number of solutions to display a person’s Mycarematters profile behind the bed, many of of which are now in use in different hospitals.

So, back to the question of why we are calling it a system. It’s going to take quite a while before every person at risk of a stay in hospital has a Mycarematters profile in place in advance of a hospital stay, and there will always be some people reluctant to use an online service. They should not be denied the benefits of having a Mycarematters profile, so we are providing hospitals with blank forms that can be completed by hand by families, volunteers or staff and displayed in the same way. We are now working on ways to digitise those handwritten profiles, with the patient’s permission, so that it can be available for future stays in the same or other care settings.

So the Mycarematters System is a hybrid of digital, paper and display solutions, designed to enable the widest number of people to reap the benefits of having a Mycarematters profile, whether on- or off-line and regardless of the care setting.

If you feel there are ways we can improve our service we’d love to hear from you: click here to email us. If you work in a hospital or other care setting and would like to use Mycarematters please click here. And if you’d like to create, update or retrieve a Mycarematters profile please click here.