Should personal information be on view?

The carer’s eyes lit up with delight as he spotted that Geoff had been an RAF fighter pilot in his early career. John was obsessed with planes and he chatted away to Geoff about things that meant nothing to me but clearly sparked a response in Geoff because he was beaming and nodding his head.

I’d always felt that Geoff, despite his dementia by now being quite far advanced, was able to understand more than people thought. Because he was generally non-responsive people stopped trying to engage him in any meaningful way, but here he was, becoming quite animated, lifting his head up and making eye contact.

John only knew about Geoff’s flying career because I’d made a note of it on the Care Chart on his bedroom wall. Until I’d put the chart up that kind of information would have remained buried deep in his 100 pages plus care plan in a file on the shelf in the manager’s office. I’m sure John would have searched for a way to engage with Geoff because he was that kind of carer, but this give him an instant way in, and I suspect both of them will have experienced a feeling of wellbeing that lasted long after the brief conversation ended.

It is experiences like those that lie behind our insistence that a person’s Mycarematters profile is visible to all those interacting with them, whether in hospital, in a care home or in their own home. Geoff was in a care home and his care chart was on view to all staff members and visiting professionals. It was particularly helpful to bank or agency staff who had little opportunity to get to know the people they were caring for.

It is even more important during a hospital stay, which can be a highly stressful and confusing experience for someone living with dementia, to provide staff with a way to meaningfully engage with the person they are caring for. Mycarematters enables staff to see the person beyond the dementia, but if that information is hidden away in the file from the people that really need it: the housekeeping staff and volunteers as well as health care assistants, nurses and doctors, those opportunities for meaningful engagement that result in a release of healthy endorphins aiding a quicker recovery, will be missed.

This approach has recently been endorsed by NHS Improvement in their Dementia Assessment and Improvement Framework which recommends that key at a glance information is displayed above the bed (with person’s or carer’s agreement): preferred name, likes, dislikes and enhanced care needs (without breaching confidentiality).

Display Board website 1118That last point about confidentiality seems to be a bit of a challenge: can one display this information and not breach confidentiality? We believe we do achieve that with Mycarematters. When displayed with something like our Display Board, a person’s Mycarematters profile is legible only to those standing reasonably close. In a ward environment it cannot therefore be read by people just passing by.

MCM TNV Image websiteFor those who want still further confidentiality we offer the Twist-N-View hanger which displays an attractive picture on the front with a pocket for a person’s Mycarematters profile on the reverse. So the information is readily to hand but can be turned to the wall when not needed.

We heard a lovely story from one of the first hospitals using Mycarematters, where a member of housekeeping staff serving tea to an elderly lady living with dementia noticed on her Mycarematters profile – on display behind her bed – that she had been brought up on a farm. The member of staff had also been brought up on a farm and spent a delightful few minutes reminiscing with the lady about old times. The details of that conversation may have slipped from the patient’s memory within minutes, but the sense of wellbeing will have remained with her for a lot longer. Those precious moments don’t happen when information is buried away in the file.

Link / back to Mycarematters website.

Zoe Harris cared for her late husband Geoff at home for about five years before he moved to a care home for what turned out to be the final 13 months of his life. It was his experience of hospital stays, respite care and his final months living in a care home that led Zoe to develop the Remember-I’m-Me Care Charts and then the online service Mycarematters.

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When less is more

It’s tempting, isn’t it, when trying to explain something, to keep on using more and more words to get your point across?

We all know how much more difficult it is to say something succinctly than to waffle on. As Blaise Pascal said back in 1657, “I’m sorry I wrote you such a long letter; I didn’t have time to write a short one.”

There are often good reasons for keeping it short, and none more so than in the busy world of healthcare. Families may be asked to provide information about their relative being cared for in hospital, but if the resulting document is pages and pages long the sad reality is that it will rarely get read. Much as the staff want to, they do not have time to sit down and sift out the really important things that will make a difference to the care they deliver.

So when we were developing Mycarematters, keeping it short was an attribute we deliberately retained from the original charts. On those, physical space was the limiting factor but we soon saw how it encouraged people to think carefully and prioritise what was really important. We ask people to do the same when creating a Mycarematters profile online, so that a person’s core needs and preferences can all fit on a single side of A4. In that way, hospital staff will see a snapshot view of the things that matter, and are much more likely to scan their eyes across the printout (or scroll through some brief data online) than rifle through multiple pages.

To return to Mycarematters home page, click here.

Mycarematters works in any care setting

We originally designed Mycarematters as a way of reliably sharing a person’s non-medical needs and preferences with hospital staff, wanting to eliminate the delay between admission and collecting the information about what matters to a person, when they can’t communicate those things for themselves.

But of course it works just as well in care homes to ensure everyone interacting with the person is aware of the information they need to deliver person-centred care. There is then the added benefit of a person’s Mycarematters Profile being immediately available in the event the person has to undergo a stay in hospital.

It’s just the same for people being cared for in their own home. It’s ready and waiting for a hospital stay, just in case, but it can also provide visiting carers with a quick introduction of the information they need to provide a more personalised style of care.

A person’s Mycarematters profile can be viewed on any internet linked device but we find that printouts are still the most popular way to display a person’s Profile, and we offer a range of display options to suit all environments: click here for further information…

Wish to create a free Mycarematters profile for yourself, a relative or your care home residents? Click here

Leaflets anyone?

MCM leaflet cutout v2Our design team have created a new leaflet to explain what we’re all about, for those people most likely to undergo a hospital visit, and we need to get them out there! Are you a homecare agency, a memory assessment unit, a carers’ group, GP surgery or any other organisation interacting with people who might benefit from having a Mycarematters Profile?

If so, please email us a brief description of your organisation, the number of leaflets you need and your full postal address, and we’ll get some in the post to you.

It’s entirely free to create a Mycarematters Profile and having one in place can help hospital staff get to know the person beyond the medical condition. It provides information staff need if they are to deliver person-centred and holistic care, and is particularly important if the person will struggle to communicate their needs and preferences.

What’s different about Mycarematters?

Three aspects make Mycarematters stand out from the other interventions designed to improve person-centred care in hospitals.

Brevity – few of the hospital staff interacting with a patient will have time to go to their file and read what might be considered ‘non-essential’ information. But put a single page of facts-at-a-glance in their line of sight and they’ll be able to see a patient’s likes and dislikes within seconds.

Immediacy – when a person arrives on a ward unable to communicate, it might be a day or two before family members visit or staff get the opportunity to contact them to find out more. Until then, staff will be unaware of what matters to the patient which can lead to mistakes, as well as confusion and anxiety for the person. If a Mycarematters profile has been created in advance of a hospital stay, it can be brought in in paper form, or is available for staff to view or print out from any internet linked device.

Transferability – a person’s Mycarematters profile can be accessed from any internet linked device with their name, date of birth and Mycarematters code. So, whether moving between wards or hospitals or transferring to residential care, the person’s Mycarematters profile can immediately be viewed onscreen or printed out.

We are working hard, not only to raise awareness of the importance of creating a Mycarematters profile, but also to encourage hospitals to embed the use of Mycarematters into their procedures. Create profiles now, for yourself and the important people in your life, and help spread the word!

Click here to create a Mycarematters profile.

Click here for further information on how your hospital might use Mycarematters.

 

 

 

Mycarematters in the papers

We had the opportunity to do some advertising in a couple of the national papers recently, as there were some tempting deals in recognition of World Alzheimer’s Month. It’s easy to get bogged down in the day to day firefighting and minutae of running a project like this, so an advertising campaign is the perfect opportunity for us to remind ourselves of the bigger picture: our goals and aspirations, who we most need to reach, what outcomes we are seeking.

Design team meeting 180717

After a couple of brainstorming sessions with our fabulous designers, the Mycarematters Design Collective, this is what we came up with:

In the Guardian on World Alzheimer’s Day we published this…

Guardian ad 210917

And in the Mail on Sunday’s Lifestyle section a few weeks later we went with this…

Mycarematters MoS advert 151017

We asked the ‘Twitterati’ for some feedback and ‘Stan the runner’ in particular got a lot of comments: ‘Very touching and warm’, ‘visually striking’, ‘captures the essence of the person’, ‘helps us see beyond the illness and distress’, ‘simple to read, easy to understand’, ‘so very true: everyone needs to understand how a little chat can go a long way’, ‘brilliant idea: need more of this’, and more.

It’s unlikely to be something we do on a regular basis but it was a useful exercise and reaffirmed for us how vital a service like Mycarematters is to help encourage a person-centred approach for ALL patients.

To create, update or retrieve a Mycarematters profile click here.

Why do we call Mycarematters a ‘system’?

Mycarematters is much more than ‘just’ an online platform. I’ll explain what I mean by that, but first a bit of background.

Initially, we produced the Remember-I’m-Me Care Charts, simple wall charts to share a person’s needs and preferences, which have been adopted by care homes throughout the UK. When a care home manager commented how useful it was for the paramedics to read it before transporting a resident to hospital, we wanted to find a way for that information to travel with them. Our first solution was the Pocket chart, which addresses some of the shortcomings of the other solutions available. It is designed to fit in a pocket or handbag, stand up by the bedside and it’s shape and size make it difficult to file it away. It also retained what I believe to be a vital feature of all our tools: it is a quick facts-at-a-glance read.

The Pocket Care Chart is now widely used, but it does not address the issue of information getting lost in transit or left behind. So that’s where Mycarematters comes in, utilising the benefits of the internet to store and share information, and making it accessible via any internet-linked device.

A person’s Mycarematters profile can be viewed onscreen, but limiting it to that loses an important feature of the care charts: ensuring that anyone interacting with the person has access to their needs and preferences. At some point we may be able to set up tablets next to hospital beds (it is unlikely in the foreseeable future that all porters, volunteers, housekeeping staff etc will be issued with any kind of electronic device) but for now what hospitals are telling us is they need printouts.

The question then arises as to where the printout should go. I am convinced that it needs to be in everyone’s line of sight. Even a single-sided sheet of facts-at-glance is less likely to be seen if it’s consigned to the file. (I was delighted to see that NHS Improvement agreed with this principle in a recent report.) Every member of hospital staff has a role to play in maximising the quality of care received by a patient, so it stands to reason that every member of staff needs to understand what matters to the patient. Few staff will have the time – or feel they have permission –  to go to the patient’s file for ‘non-essential’ information, so we have a developed a number of solutions to display a person’s Mycarematters profile behind the bed, many of of which are now in use in different hospitals.

So, back to the question of why we are calling it a system. It’s going to take quite a while before every person at risk of a stay in hospital has a Mycarematters profile in place in advance of a hospital stay, and there will always be some people reluctant to use an online service. They should not be denied the benefits of having a Mycarematters profile, so we are providing hospitals with blank forms that can be completed by hand by families, volunteers or staff and displayed in the same way. We are now working on ways to digitise those handwritten profiles, with the patient’s permission, so that it can be available for future stays in the same or other care settings.

So the Mycarematters System is a hybrid of digital, paper and display solutions, designed to enable the widest number of people to reap the benefits of having a Mycarematters profile, whether on- or off-line and regardless of the care setting.

If you feel there are ways we can improve our service we’d love to hear from you: click here to email us. If you work in a hospital or other care setting and would like to use Mycarematters please click here. And if you’d like to create, update or retrieve a Mycarematters profile please click here.